Monday 16 September 2013

Spoons

Until recently, I often had a hard time explaining to my friends and family what it is like to be Sick. I have tried describing symptoms, I have tried directing them to the Wiki page, I have tried describing a typical Week In The Life of Me. Sometimes they sort of get it, but only for a little while. Often times, they over simplify it, and just tell me I need to be eating better, and/or exercising more. Often times they take it to the opposite extreme and tell me I should be doing less, and coddling myself more.

Then I stumbled across the Spoon Theory. Suddenly, I had at my disposal, the prefect metaphor to explain to people what it's like! Variants and all! I do not know why I, of all people, couldn't think of something like this on my own. I am a writer, for heaven's sakes! Metaphors are how I paraphrase what others are telling me to make sure that I've understood what they've said, and very often, I will use them to clarify my own statements. *facepalm* Nonetheless, I've got it now.

Here's the simplified version:

When I wake up in the morning, I have a pocket full of Energy Currency (in this case, the writer chose spoons, as it was what was at hand). I have only this finite amount of Spoons for the day, and each day, the starting amount varies. So I have to very carefully balance out how many Spoons I have, with what I want to get done that day. If I over spend, I have to be very aware that I am now borrowing against tomorrow, which almost always comes with interest. Meaning that if I over do it today, tomorrow, I'm going to be on my ass. Which, if you think about it, sounds more like what your grandparents might say than a 27 year old. Fitting, since half the time I feel like I'm 80 years old.

The thing to really be aware of in this metaphor, is that everything costs Spoons. Showering, one spoon. Shaving, one spoon. Getting dressed, one spoon. Making breakfast, one spoon (minimum). There are days that I simply do not shave, or wear anything more complicated than Jammies, because I simply do not have the energy.

Everyday life is a constant battle of Quantity vs. Quality. Some days I get all dressed up, just to sit around the house, because it helps battle the depression.Other days, I push through a laundry list of chores, because either my sanity requires it, or I'm trying to wear myself out to combat the insomnia. Sometimes it works, and sometimes I end up puking my guts up from the pain of having done too much.

The few times that I do exercise instead of housework (as if that weren't enough workout for 2 people!), it feels good in the moment. There are some things that I should be doing on a regular basis, like stretching (see bottom of article for diagram), and if I knew what was good for me, I'd get back into my Fitocracy account. I still have to keep everything in balance, though. "Too much of a good thing, is no longer a good thing." In this case, too much working out is worse for me than none at all.

Painkillers, caffeine, and naps help to reclaim Spoons, sometimes, but not always. Often times, these measures simply keep me stable enough to sit and relax without bleeding away excess Spoons from the pain. The biggest consumer of Spoons? Stress. I'm getting better at emotional control in the face of adversity, but a worrier will always be a worrier, to some degree, and I'm the eldest sister of three, and a mother in training. Trust me when I say that I am a professional level worrier :P Add to that the potential volatility of a French/Scottish temper, and we've got a very explosive combination. But, baby steps. I am getting better at controlling it all, little by little. If not for my own sanity, and the sanity of those around me, then for my own health.  





Sunday 1 September 2013

Educate Yourself

"A little knowledge is a dangerous thing." ~Alexander Pope

Today, I went to the Urgent Care Centre, on the advise of TeleHealth and my friends and family, reguarding a bee sting.

Forgetting the fact that he put pen on my arm without asking, nor explaining why, when I mentioned that I have Fibro, the Dr. then took it upon himself to tell me that Fibromyalgia is not a disease that is the purview of a neurologist, but that I should be seeing a rheumatologist. That cognitive dysfunction is not a symptom of Fibro, and if I am experiencing that, it must be something else.
Since when does a General Practitioner, working out of urgent care, know enough about a disease that most specialists are still struggling to understand? Thankfully, I am a well educated patient, and knew enough not to panic and think that my specialists have been jerking me around for two years.
Fibro fog is a real thing. It manifests itself in dozens of ways, and cognitive dysfunction is part of that.
I have done my research (as has my own GP), and I have seen a rheumatologist, (which, by the way, is a bone doctor.  My pain is not bone specific), but thank you very much for your uneducated opinion.
People wonder why I hate most doctors, and why I hate going to urgent care or the ER. This, is a prime example of why.
Know thyself, and know thy limitations. Do not speak on a topic you know nothing about, casually, to a patient you have no intention of further educating.
And to all of those patients, out there, please remember that an ER or UCC Doctor is not a specialist, and they do not have your entire medical chart to look at when addressing the problem of the moment. Do not take their word as Gospel just because they are wearing scrubs -.-